Disability Rants and Resources

Saturday, November 11, 2017

This is an amazing informative article on the future of Spina Bifida. A must read, in my opinion!


https://www.thedailybeast.com/spina-bifida-could-vanish-with-this-experimental-fetal-stem-cell-therapy?source=TDB&via=FB_Page
Posted by JBeards935 at 9:28 AM No comments:
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Me

Me

About Me.

Hi, my name is Jim. I am an adult male with Spina Bifida/mylomeningocele and Hydrocephalus. I am able to walk, but I use a wheelchair for long distances. I have worn braces off and on throughout my life and I used crutches as a young child. I also have some of the other complications that go along with Spina Bifida.

Some of my interest include cooking, kayaking, going to the gym, wheelchair 5ks, and of course, FACEBOOKING!

My goal for with this blog, is to provide resources for individuals with disabilities find the services to assist them in their goal of leading happy, healthy and productive lives.

I also hope that people will be able to read my post and see what I have gone through and see that their is hope. Yes, there will be struggles, but with determination, you can accomplish your goals.

If you would like to be notified when I have a new blog post, scroll down to the bottom of this page and enter your email address.

Contact Me

If you want to ask me something privately, email me at



Links to resources of the disabled and their caregivers

  • Accessible Dispatch (NYC Taxi and Limousine Commission )
  • Advancing Opportunities Assistive Technology Services
  • Alzheimer's Association
  • American Council for the Blind
  • Autism Speaks
  • Bike-On
  • Blue Wing Foundation - South Jersey spinal cord injury support group
  • Brain Injury Association of NJ
  • California State Council On Developmental Disabilities
  • Center for Parent Information and Resources
  • Children's Hospital of Philadelphia
  • Compassionate Care Hospice
  • Consumer Guide to the Lanterman Act covering the right of individuals with disabilities in California
  • Council of State Administrators of Vocational Rehabilitation
  • DDD Application Page
  • Delaware Developmental Disabilities Council
  • Dept of Human Services New Jersey Medicaid
  • Disability Rights California
  • Disabled Sports USA
  • Easter Seals
  • Epilepsy Foundation
  • For Caregivers
  • Fusion Inclusion - Adaptive Racing
  • Fusion Racing
  • Healthcare Commons Inc. Family Health Services of Salem County
  • Hydrocephalus Association
  • Library of Congress National Library Service for the Blind and Print Disabled
  • Magee Rehabilitation Resource Guide
  • Meals on Wheels
  • Moss Rehabilitation Center
  • NAMI National Alliance on Mental Health
  • National Alliance on Mental Health - Delaware
  • National Association of the Deaf
  • National Center for Learning Disabilities
  • National Institute of Neurological Disorders
  • National Library Service for the blind and Physically Handicapped
  • National Suicide Prevention Lifeline
  • Nemours AI Dupont Children's Hospital
  • Neumours Hospital for Children
  • New Jersey Department of Children & Families- Office of Education and the Children's System of Care (CSOC) 1-877-652-7624
  • New Jersey Department of Education- Office of Special Education (609) -376-9084
  • New Jersey Department of Human Services- Bureau of Guardianship Services 609-631-2213
  • NJ Hope and Healing (stress and anxiety management)
  • NJ Resources for Independent Living
  • No Barriers
  • Pennsylvania Center for Adaptive Sports
  • Preston's March for Energy
  • Public Counsel Law Center Regional Center Basics - California
  • Resources for Independent Living
  • Ronald McDonald House Charities
  • Salem County Department of Health and Human Services Alcohol and Drug Abuse Services
  • Salem County Office on Aging & Disability Resource & Referral Directory
  • Shriner's Hospital
  • Social Security Administration Disability
  • Special Olympics
  • Spin Life- manual and power wheelchairs and scooters
  • Spina Bifida Association
  • Spina Bifida Association of the Delaware Valley
  • Spina Bifida Resource Network
  • St Jude
  • State of New Jersey Dept. of Human Services- PASP- The Personal Assistance Services Program
  • Sunrise Medical - Equipment
  • The Arc For People With Intellectual and Developmental Disabilities
  • The New Jersey Council on Developmental Disabilities
  • U.S. Department of Labor
  • U.S. Department of Labor Office of Disability Employment Policy - Disability Resources
  • Understanding Social Security Disability Insurance Benefits
  • United Cerebral Palsy
  • Veterans Affairs Vocational Rehabilitation
  • Walter Reed National Medical Center
  • Wills Eye Hospital

Parents Blog


My friend, Pam Halter, is the parent of a special needs adult daughter. She hosts a real, raw, honest blog for parents
who are feeling overwhelmed and need support from someone who understands. The goal of her blog is to provide a safe place with other parents who understand the pressure and frustration of raising a special needs child. Pam says, "My blog is not intended to be a rant; rather, a sharing of common emotions as we go along our lives."

Pam wants her readers to explore hearts, share broken dreams, encourage each other, laugh and cry with each other, and carry
each other's burdens. Please visit her blog on http://www.pamhalter.com/


It's all about the sweet and sour moments in our lives as we age. Focus is on the lives, activities, health and stories of people over 50.

http://theartofagaing.net/


Come live inexpensively at "Living Better Cafe", you will be surprise at the amount of cash you saved.
http://WWW.livingbettercafe.blogspot.com/

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