Tuesday, November 20, 2018

Let Me Fail


As we grow, we learn to do new things. Sometimes we get it right the first time. Sometimes we don’t, and that’s okay. Failure is all part of learning. Learning can be especially difficult for some individuals with a disability. However, being disabled does not mean we are incapable of learning, we just need a little more time and patience. Slowing down and explaining things to someone with a disability will help them understand and retain the information and process it better. It has been proven that everybody learns in different ways. Some are visual learners, some are auditory learners, and some are more hands on, or a combination of these.
A FB friend of mine had gotten a cubical shelving unit for his bedroom that needed some assembly. He had wanted to put it together himself by looking at the directions carefully. At one point, his father came into the room and saw that he was having some difficulty. Instead of coming in and offering some help, his father basically said, move out of the way and he went ahead and put it together instead of taking the time to show my friend the right way to do it and working on it together. This left my friend feeling “broken” like he wasn’t smart enough or good enough.
When I was taking the LAST course to finally get my associates degree, I had major difficulties because it was a math class, which has always been my worst subject. I went to tutoring, I met with the professor before and after class, I consulted with the Disabilities Coordinator at the college, all to try to get through this class. I would complain to anyone who would listen.
One day, when in college, I was supposed to take a test. My anxiety level was through the roof! I got to class early that morning, so I could do some last - minute studying. Soon after I got in the room, the professor came in. He could see I was upset and asked what was wrong. I began to cry as I told him about how stressed I was over the class. He asked me if he could tell me something. I said yes. I figured he was going to say what everyone else has told me, that I needed to just try harder etc, etc. Instead, he told me that he admired me. He said, “Here you are, in your 40’s with a disability, still trying to get your degree and have not giving up.” “I commend you for that.” This meant the world to me. He reassured me that I WAS in fact passing the course and that I would be getting my degree.
Having someone take their time to help us learn something new means everything.  It helps us to learn new things number one, but it also helps to boost our confidence and sense of pride. This can be invaluable to someone who has difficulty learning, so please, be patient with those of us who struggle to learn, it means the world to us.
I would like to encourage anyone who would like to, to share their own similar experiences, so we can all learn how to handle this sometimes, touchy subject.

                         


Tuesday, August 21, 2018

Put Down Your Rock! - Re-post



I first posted this to my blog back on December 1, 2015. I had SO many people tell me how much it helped them I was overwhelmed. I would like to share it again for those who may need some encouragement. I hope you all enjoy it and possibly find peace in something you may be struggling with.

Thank you.


As we go through life, regardless of whether we are disabled or not, sometimes things happen that bother us. It could be something someone said to us, the way someone acted toward us, or maybe it was the way someone made us feel.  These things can have a negative effect on us which can be physical, mental or emotional.

 I am pretty good about letting things go and moving on. However, there have been a few things that have bothered me and I just couldn’t let them go no matter how hard I tried. Every time I saw a certain person, or if I am in a similar situation where the incident occurred, it brought back memories of a not so nice time or event in my life.

 A few years ago, I took a very interesting class. One day our teacher asked us to bring in a rock with us to our next class, but wouldn’t tell us why.

The next day, although I was somewhat confused and yet intrigued as to why we needed these rocks for class, I went out in my yard in search of a rock. I found one. It had light, medium and dark gray lines through it. It was somewhat pyramid in shape. It fit in my fisted hand. I liked it.

At the beginning of class the next day, our teacher told us about an experience she had when she attended a Native American ceremony.  The leader of the ceremony asked everyone in attendance to find a rock just as she had asked us to do. Once they had their rocks, they were asked to think of something, someone or an experience they had a hard time dealing with. At the end of the ceremony, the participants were asked to place their rocks in a pile as a symbolic way of leaving their issue behind.  Our teacher wanted us to do the same thing.

 Although I didn’t want to confront this issue, I thought this was a really cool idea and I really got into it. I slept with my rock right next to my pillow so I would see it as soon as I woke up and kept it in my pants pocket during the day so I would feel it pressing against my leg to serve as a constant reminder of the issue I was letting bothering me so badly.

 During the week, I thought a lot about the issue and I tried to analyze why I was letting it bother me so much, how it was effecting my life, and what I could do to handle it better. Being reminded of the issue by the rock constantly pressing against my leg, I was able to realize that the issue really wasn’t that big of a deal. I needed to put down the “rock” and move on. It wasn’t worth it. Once I came to this realization, a huge weight was lifted off of me.

Sometimes the “rocks” that we carry with us feel more like boulders and letting go isn’t as simple as just putting them down. Sometimes the rocks get thrown back on us and we end up having to pick them up again. It sucks when this happens, but we need to make sure that we don’t let these rocks weigh us down to the point where we feel trapped and cannot get out from under them. If this does happen, we need to realize that it is time speak to someone whether it is a trusted friend, a family member, clergy, or counselor. It is okay to do this. It is okay to admit we need help. Asking for help allows us to see our issues from a different perspective and assists us in putting down our rocks.  I would love to hear from people about how they handled a difficult situation and how they were able to finally put their “rocks” down.


Thanks.







`

Wednesday, May 10, 2017

Assistive Technologies you may find helpful

This past weekend, I attended the Abilities Expo in Edison NJ. While I was there, I had the opportunity to speak with a couple people from an organization called Advancing Opportunities. This is an organization that provides many types of services to disabled people and their caregivers. I was especially impressed with their Technology Lending center. This program allows people to borrow different types of assistive technologies to try out before investing money into something that may or may not be appropriate for their needs or their child's needs. I also asked if other states offer similar services, and they do. I have provided two links below for your convenience, the first one being for my home state of New Jersey and the other for the services offered in other states. I hope you will find this information useful.

Sunday, February 26, 2017

See ME!

I am amazed at how rude and disrespectful people can be toward the disabled. Too many times I have heard stories of disabled people who have experience situations like this. Contrary to what some people believe disabled people are not invisible or stupid.  It’s no wonder some of us retreat from going out in public or don’t even consider applying for a job for fear of rejection or disrespect.

While talking to a couple Facebook friends, they were telling me about their jobs. One friend, who has Cerebral Palsy, was treated as if she was not even there some days. She was given less and less responsibility and eventually pushed out of her position. This is someone with a bachelor’s degree.


Another friend, who uses a wheelchair, works for a movie theatre in his area. He’s the guy who rips your ticket in half and directs you to which theater your movie is showing. He tells me all kinds of stories. Some are funny or interesting, while others are a lesson in patience and self - control. He gets talked down to, ignored, disrespected and even tripped over!  People walk right past him without stopping to get their tickets ripped, he gets talked to as if he doesn’t know what he is doing or in a very patronizing manner. And my favorite example he gave, “Oh, I’m sorry. I didn’t see you there.” Seriously? You can’t see a big ‘ol power wheelchair right in front of you?!

I have noticed since the introduction of the Americans with Disabilities Act, people are responding better to the needs of the disabled. More consideration is given when we apply for jobs and with regards to accessibility into areas of the community. But we still have a long way to go to truly be accepted into the non-disabled world as a whole.

I would like to encourage all of you to share your experiences on this topic so we can learn from each other and find ways to handle situations like these in the future. Thanks. 

Sunday, August 7, 2016

BREATHE!


            “How do you ever sleep again, once your spouse has suffered a heart attack and is now home with you? I feel so responsible for his wellbeing, now that he is lying here with me… no nurse, no call button no machine monitoring all aspects of wellbeing, no sense of security that a hospital offers. I’m just not sure I will sleep, or as soundly as I’d like. :::sigh:::” ANH


 

What a profound statement. This was the reaction of a friend when her husband came home from the hospital after suffering a heart attack.

When I read this, it really hit me. How do you ever sleep again? In an instant, your whole world has changed forever.

BREATHE!

Sometimes life doesn’t go as we planned. A heart attack, a loss of a loved one, a disability. These can all be devastating. You feel paralyzed Why is this happening? A million thoughts go through your head. What if this happens? What if that happens? How am I going to get through this?

BREATHE!

Take a few minute to just sit and collect your thoughts. Write down what you are thinking. Make a list of questions you have for the medical professionals. Talk to the doctors, the nurses, the therapists. Talk to others who have been through it.  They can give you a been there done that perspective on things. Gather as much information as you can from anywhere you can. You can do this!

BREATHE!

There is a saying, “You never know what you can do unless you have to do it.” You have to find a way to get through this. This is your “new normal”. Create a support system to lean on and use it. You will be surprised how many people are willing to help. Things will be okay. You got this.

 

                                                 BREATHE!                                                

In my case, I was born in 1966. My mother was 43 and my father was 46. This was considered old to have a baby at the time. My father was mad at himself because he didn’t think that my mother needed to be pregnant at the time. My mother was concerned about her own health and my health as well.

For one of my college classes, I had to write an autobiography. This was a great experience for me. Being the youngest of five ranging in age from birth to twenty - three at the time I was born, I was able to get insight from them, as well as my parents.

My two older siblings were in seminary and college at the time I was born. My brother in seminary expressed concern for both of my parent wondering how they would be able to handle the pregnancy given our parents ages. When I was born, it was discovered I had Spina Bifida. This was devastating news to my whole family. What now?

BREATH!

At the time of my birth, the medical community was still working on developing treatments for infants born with Spina Bifida. I was born with the normal complications of Spina Bifida, open spine, bowel and bladder incontinence, orthopedic problems. In addition to these issues, I was also born with hydrocephalus (build-up of cerebral spinal fluid in my skull). This issue does not affect every child born with Spina Bifida. 

Things were touch and go for quite a while. I was in pretty bad shape. I had spine surgery almost immediately after I was born, I had a shunt placed in my head to control the hydrocephalus. This had to be replaced a few days after it was placed due to a malfunction. I even stopped breathing once. I was told a member of the medical staff had to perform CPR on me.

Things in life don’t always go as we planned, but there is always a way to get through them. Family, friend, loved ones and of course faith in God will always see you through the dark times. Just step back, take it all in. Things will be okay.

BREATHE!

I followed up with my friend about her husband’s condition. She told me that he has some degree of depression and anxiety. The doctor said this is normal for what he (they) have gone through. She also said that this has been a life altering experience, but they are getting through it. Amen.

 

 

 

 

 

 

 

 

Saturday, May 7, 2016

Happy Birthday To Me!


Last week was my birthday week and I was very excited. I was turning 50! I always thought 50 was old. When did I get old? AARP here I come! To help me celebrate, several friends and family were planning on taking me out to eat. One friend even threw me a party! Why do celebrations always have to involve food? Normally, I am up for putting on the feed bag and stuffing my face. I guess that explains how I got to Weight Watchers, huh? This should be interesting.
Pizza, Chinese/sushi buffet, party, Mexican. How was I going to eat, I mean get through this week and stay on track with Weight Watchers? I decided I was not going to worry about my weight this week, but how? How could not worry about it, eat what I wanted, but not totally sabotage my weight loss efforts? I was going to have to dig deep for this one! Real deep. Time to pull everything I had learned from Weight Watchers. I could do this. It was just going to take some strategizing and major willpower. I was going to enjoy myself, but use what I learned about portion control and good choices.
Counting points really wasn’t an option during my birthday week because of the variety of foods, so I was going to have to use other techniques.
·        Eat something lower in calories before I went out. That way I wouldn’t scarf down everything in sight.  I’ve done that before. It was not a pretty sight.
·         Drink some water. This would fill my stomach to keep me from pigging out.
·         Making smarter food choices.  Healthier choices, healthier me. J
·        Use portion control This would be a good idea too.
The question is, could I actually stick to all of this?
And so it began. The first birthday meal came - Pizza. The friend I was going out with is also on Weight Watchers, so we decided together to go with their seafood pizza. We justified the seafood pizza by saying it was healthier than a greasy meat pizza. So what if it had Alfredo sauce on it. That didn’t count. Right? We also ordered a seafood salad with a light dressing. We both love seafood, so this worked well for both of us. It was delicious. One day down.
Second, Chinese/sushi buffet. This was not as easy as the pizza because it was all very good and so many choices. I decided to have what I wanted, and limit the portions. To celebrate my birthday, they brought out three little pieces of cake with a candle and sang happy birthday to me. I couldn’t leave the bite sized pieces of cake there. That would have been rude! J
 Then we decided we wanted ice cream. Again, I went for it. Vanilla, honey, ginger flavored.  I only got one dip and took my time eating it.  It was well worth it. Second day down.
The third outing was Chili’s. I looked at the menu online ahead of time and decide to have their fish and shrimp tacos. They were very good. I had some chips and salsa too. Water to drink. Oh, the sacrifices I make for Weight Watchers. Sigh…
And finally, The Dinner Party! I went over early to help with food prep and set up. While we were out getting last minute things for the party, we got small tuna subs for lunch to tide us over til dinner time. We didn’t even get chips!
Since I knew about the party ahead of time, my friend and I planned the menu together, and it ended up being mostly gluten free, which was going to help keep the carbs down, too. A few of the items were single servings, so that helped with portion control.
The Menu
Appetizers: glazed bacon, grilled asparagus, cheeses & crackers
1st course: baked shrimp
2nd course: Caprese salad
Main course: peach & Riesling glazed ham, sesame ginger chicken & pineapple kabobs, fresh green beans, potato salad, and cornbread
Dessert: Irish Cream Chocolate Mousse. They called it Jim’s Grave Dirt, (gummy) worms and a song included! Thanks, guys! LOL
Drinks: Pam’s Sangria, Malbec wine, sweet tea and water.

Dessert: Irish Creme Chocolate Mousse
Drinks: Pam's Sangria, Malbec, sweet tea, a
Yeah, my friend likes to really bring it! Everything was amazing. I can still taste the mousse!
The next week came. The day of reckoning had was upon me.
Weigh in Day!
I stepped on the scale. Moments later…. 3.8 pounds down!
What?
 I had to ask again to be sure. It was true. I was down 3.8 pounds after my birthday week! How did that happen?  Apparently the smarter choices when possible, portion control, and going to the gym in between all worked. Yes!
So, there it was. My birthday week was over. I was able to eat what I wanted, with a little sacrificing. I was able to navigate my way through some weight loss obstacles and I lost more than I thought I would. Happy birthday to me!  
I hope that this will be encouraging to others on their weight loss journeys. There will be challenges along the way, but with some planning, you can get through it.
 
Dessert: Irish Creme Chocolate Mousse
Drinks: Pam's Sangria, Malbec, sweet tea, and water
 
 
 
 
Dessert: Irish Creme Chocolate Mousse
Drinks: Pam's Sangria, Malbec, sweet tea, and water

Dessert: Irish Creme Chocolate Mousse
Drinks: Pam's Sangria, Malbec, sweet tea, and water

Dessert: Irish Creme Chocolate Mousse
Drinks: Pam's Sangria, Malbec, sweet tea, and water