Wow. I just read an article on Facebook by the site The
Mighty, a site to inform and empower those of us with disabilities. The article
I read stated that the government now wants to look at our social media pages
as a way to determine whether we are “disabled enough”. This is horrifying.
As I read this article, I began to think about what I post on
social media. I post pictures of myself taking part in races with my handcycle.
I love using my handcycle. It keeps me physically and socially active. It also
gives me a sense of accomplishment and pride, which everyone likes to feel. Am
I going to have to stop posting these pictures for fear of losing my disability
benefits?
I agree that the government needs to monitor who gets Social
Security Disability, but as a person with a disability, I find this proposal
very invasive. Just because we are disabled doesn’t mean we have to stop
living. By looking at my social media page, it looks like I am quite active and
have fun, which is true. However, what my social media page does NOT show is
now badly I hurt after physically exerting myself. The reason I do this to
myself is to keep myself active in all ways so that I don’t become completely
isolated from the world around me.
A couple years ago, I was sent several packets of questions
by Social Security asking me question about my functionality. One of the
questions wanted me to explain what I do from the time I get up to the time I
go to bed! This varies from day to do depending on how I feel and what I have
planned for that day, (just like everyone else.} What this question didn’t take
into consideration was whether I woke up hurting, whether I might be nursing a
pressure wound from simply walking too much one day or the fact that I am
mentally drained from someone having to explain something to me yet again
because of my learning disability.
I have talked to and become friends with people on Facebook
who have similar disabilities to mine, and others who have disabilities
different from mine. We all have different abilities and disabilities. This
applies to non-disabled people as well. Don’t judge us on what you see on our
social media pages. Get to know us and what we go through on a day to day basis
before you judge what we are and are not capable of.
As for me, I am only able to stand for about 20 minutes, while
hanging on to something, because my balance is off and my muscles start to
ache. If I overdo it, my back KILLS ME by the time I am able to sit and relax. This
pain can last anywhere from a half an hour to days depending on how much I over
exerted myself. Being on disability enables me to do what I need to do and have
the ability to take care of myself.
Judging people on the basis of what they see on social media
is discriminatory. Not all disabilities are visible and should not be judged as
such.
Has anyone else heard about this? Have you experienced this
kind of thing yet? Let’s share any information we come across on this subject
so we can fight this discrimination!
This is a blatant form of discrimination and it needs to be
addressed. I would like to encourage everyone, including individuals with disabilities,
their caregivers, even their case workers to contact your state and/or federal government
representative to voice your concerns on this subject. Below you will find a
link to the article I got my information from and also a link to find your states
representatives.
So very true; I know people who are quite 'nornal' one day and can do absolutely nothing the next day due to a flair up on their symptoms.
ReplyDeleteDon't judge