This post is
kind of a follow up to my post on Statin medications. However, this is from my
emotional point of view at the time. For those of you who have read the post on
Statin medications, you might see/read references.
A few days ago, in one of the
Facebook groups I am in, someone was having a “I Hate Spina Bifida Day”. There
was some discussion about his feeling, and it was decided that he was in fact
entitled to have an “I Hate Spina Bifida Day”. This is what prompted this post.
Several years ago now,
I was taking a cholesterol medication called Symvastatin. I had a severe
reaction to it. In the commercials for this medication, it says “May cause
muscle weakness.” They aren’t kidding. I cannot prove it, but I believe that
the medication, along with Spina Bifida, caused me to have a, worst case
scenario reaction.
I had to use a walker to get around, or scoot around on my
butt. My fingers would not fully extend. When I started going to PT, under my
doctor’s advice to keep my strength up, I couldn’t even curl two pounds.
Everyday tasks such as making a pot of coffee, or doing laundry became nearly
impossible. I could barely sign my name to a check.
I was unsure how long this would last. Would it be pertinent?
Would I deteriorate even more? My heart is a muscle too, would that be affected?
My concerns were endless. My siblings even suggested that I look into making
wheelchair modifications to my house in case it came to that. I told them I
wasn’t going to do anything until my doctor told me it wasn’t going to get any
better.
I kept in contact with my doctor, who referred me to a
neurologist to see what he thought. When I called to make the appointment, they
told me it would be over a week before I could get in to see him. I went ahead
and took this appointment, but asked if they could call me if they could call
me if there was a cancellation because I was very concerned. They said they
would.
After I hung up the phone, I went into a COMPLETE
MELTDOWN. I slammed the phone down, I screamed, I cried, I cursed, I SPAZZED! I
had had enough. I was tired of it all and wanted some answers!
After my meltdown, the phone rang. It was the doctor
asking if I could come in the next day. I was very relieved!
So, in conclusion, YES, it is okay to have a meltdown,
an “I Hate Spina Bifida Day”, or whatever you want to call it. Have any of you
had one of these days? How did you handle it?
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